Friday, August 17, 2012

Getting through this weekend, and why the fight is worth it!

So what's up? I hope you're all doing well. Thanks again for reading. I am almost a week out from my last chemo treatment and my levels are at their lowest. Last night I felt pretty crappy. Had a headache and really tired. I thought for sure I was headed toward a fever. I took some tylenol and got some sleep and I feel better today although still really tired. 

I went to the clinic today and my white cell count is .6 so for the next couple days I have no immune system. This is really scary for me and has made me borderline paranoid about germs. I just really don't want to have to go back to the hospital. I have these masks to wear that keep me from breathing in germs. You wanna make someone uncomfortable and stare at you awkwardly? Wear these out in public while running errands ; )
So not much else is going on around here. I'm mostly gonna just stick close to home and live in a bubble. I did want to take this time to talk to you guys a bit about light the night I've mentioned a few times. Before I do, I feel a little uneasy about this. I don't usually do the whole, jump on a charity's band wagon, ask for money thing. It makes me feel weird. Like what is so special about this cause, or my cause that I have a right to ask you to give up your hard earned money? That being said, I promise this will be the one and only time I bring it up from here on out. With that I give you my begging: 

If there's one thing I've taken from this process, it's that this disease does not care if you are young, old, a mother, a child, a spouse. If you would have asked me a year ago what I would be doing right now, the last thing in the world I would have guessed is that I would be battling leukemia. My family has been extremely blessed in that we have an amazing support system and health insurance that covers my treatment. One person in the United States is diagnosed with a blood cancer approximately every four minutes. Not everyone is so lucky. The leukemia and lymphoma society helps provide support in every way including financial. The light the night walk is a fundraiser that helps support these efforts to help patients like myself who are dealing with a blood cancer. Survivors, family, and friends, all those touched by this disease come together to celebrate those who have been lost, and those who are surviving. There are balloons (each color representing either a survivor in white, family of in red, or someone lost in gold) each with a light inside. At the end there are family friendly events. This will be my first and I cannot think of a better way to celebrate what will hopefully be by then my clean bill of health. I am asking that if my story has touched you in any way while reading to please consider donating. Even just $1. This is a cause I have become passionate about because I know what it is like to be touched by this disease. I am lucky enough to be on the other side and I want to help others going through this as well. 



Lastly, I was kinda surprised by a conversation I had today. The nurse at the clinic was talking to me today about Lillia and about school starting again (SO excited btw) and made a comment about how she doesn't know how I am juggling all of this at the same time. School, Lillia, my amazing husband, the new LLS stuff, housework, to me is not stuff to be juggled. These are all things I have a passion for and love to no end. These are what I love to do so they are easy and they are what make me juggle and fight through the treatments and time away. It's not hard when it's fun. If it weren't for these things and especially my family, I don't think I would be fighting near as hard. So thank you to my husband and daughter, to my friends, and all the things that make this worth it. I love you all. And thanks for listening to me ramble through another blog. =) Take care and talk to you soon, H

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