Hey everyone :) I hope you all are well! So what's new? I think the last we talked I had just gotten done with my last round of chemo. Well, I ended up with another infection in my line from that. I was really sick. I had a fever and with this one I got really weak and tired. So needless to say I went back to OSU. They put me on antibiotics and I stayed for a few days.
I hate when this happens (that is, infection in the line) because it means they have to take it out and put a new one in. I have crap veins these days anyway from all this so it's not good news. They take it out, but they still need access for medicine and blood for testing and what not so they stick and stick and stick...trying to get an IV in. It always ends up the same way. With me telling them to leave me alone for a while. (Putting it nicely). This time was no different. They stuck and stuck..finally got one in but they wanted two. Well before they could try for the second the Dr. came in to take my line out (no big deal just the one connected to my heart lol). No sooner than he was walking out of the door, the nurse was coming back in and tying on the tourniquet! It's like they think I'm a pin cushion! Ah well, just part of the game. ; ) I survived and that's the main thing. They put a new line in and sent me home on IV antibiotics ..that was that.
In other news I went for my bone marrow biopsy yesterday as well as my line removal. I was extremely nervous. For those of you that have been reading, the first two of these I had were not that bad and I said that. They also gave me good drugs for those. The third one all they gave me was ativan. That was miserable and probably the worst pain I've ever been in. SO this time I was so scared it was going to be that way again. I told the nurse practitioner that and she gave me ativan and dilauted. They pushed the dilauted slowly because of my chest pain last time. It was nerve wracking but man did it do the job! I remember a couple instances of like AH! stop that! lol but other than that it was just pressure that I felt. I'll take it! My husband was there and he is always a calming force for me. Oh and not only did the drugs work for the procedure, they worked for the WHOLE day LOL. I was talking to my husband this morning and there are holes in my memory. I find this intriguing. I hope I didn't do anything stupid ; )
Today I'm feeling pretty much back to normal. My hip is really tender but that should go away in a day or two. It is really nice to have my line out too. Since April every time I wanted to shower I would have to get either an aqua guard or saran wrap and go forth in a 5 min procedure of taping my chest up. It will be nice to just be able to get in. Don't take that for granted! LOL.
Anyway, in between the fever and the biopsy we went to the light the night walk as well as celebrated my daughter's 4th birthday. Life is moving on and I am so glad to be here for it. The walk was beautiful and I am really glad my family and I went. My daughter and I got our faces painted, there were the lit balloons, and a nice ceremony to remember those lost and those who have survived blood cancer. Then the main walk. For my daughter's birthday we took her to chuck e cheese's and later had cake and presents with the family. All the celebrations throughout these 6 months have taken on such a special new meaning for me. My daughter's birthday is no different. She is so beautiful. I am lucky to be here to celebrate another milestone in her life.
I got back to the gym all last week and it felt great. It felt like..normal (whatever that is). I have lost a lot of strength, especially after that last infection, but I know I'll get it back. I think it will be even more satisfying actually. Well, now I just wait for the results of the biopsy. I should have them Thursday when I got back to see my Dr. Then she told us (or rather my husband, this is one of the holes I mentioned earlier) that if they are good I will come back every two months for blood work. That's it. I'll keep you updated. :) I hope things are well with all of you and thank you for reading. It means a lot to have a place to throw everything out there. Take care and talk to you soon!
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