Saturday, June 1, 2013

complications

Hey everyone : ) I hope you're doing well. Thanks for reading again. Sorry it's been so long since my last post. Things have gotten a little rough for me and I have been feeling a bit on the ...crumby side for a while. I am feeling a bit better now.

So I have been through what they call "standard" chemo. And started the clinical trial drugs. I started getting fevers about a week ago and my line was infected. So that was taken out and I now have two IV's in my hands. It has been a constant battle since then with antibiotics and pills to get the fevers under control. I have been feeling so...blah and tired. I went down for a CT of my chest and abdomen yesterday and they found pneumonia in my left lung. I am glad they finally found the source of all of this and we can target it. I was without fevers last night and so far today. I am feeling much better. I still don't have much of an appetite. I have actually lost over 10lbs these past two weeks, but I wouldn't recommend this diet ; ) haha!

I had to make the decision to stop the clinical trial drugs. On the medication I developed a rash, blurry vision, and other (better if i don't mention them) side effects. My counts are still doing what they want them to so there is no worry there. I have had 3 transfusions of blood/platelets already so I have to say thank you to those someones out there who took the time to donate.

During all of this Lillia was supposed to stay with my for some of these days and hasn't been able to because of the fevers. I hate all of this for her. I know it's allw orth it in the long run and I am keeping it in perspective, but still I will be so glad when my counts start recovering and everything just falls into place. I miss my family. That's the hardest part. They are coming to stay Sunday night so I am so excited for that!! They stayed last week too and it was so nice having them here. Even just sleeping in the same room had comfort written all over it. It felt like home.

My birthday is coming up and just really want to be better by then. James took some time off and they are going to be coming up for that too. It stinks to be spending another birthday here but I am glad to have another birthday.

Well that's all for now. I feel like this one was a bit rambly. Sorry about that, thought I'd just try to get an update out there. Not much else going on. Just watching the counts now, trying to avoid fevers, and getting better. Thanks for reading. Love to you all :)

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